William, our beautiful, caring, funny, articulate little boy was diagnosed with Duchenne Muscular Dystrophy in January 2016 at just 3 years old. Duchenne MD is one of the most common fatal genetic disorders to affect children around the world. 1 in 3500 boys are affected with DMD. It is a devastating, progressive and currently incurable... Continue Reading →
We did it!! Triathlon success!
What an amazing day. The sun was shining from our start at 7am all the way through to the fun run at 11am. Over 45 Triathletes took part, competing against themselves for their personal targets to achieve 1.25km swim, 50km bike ride and 5 mile run......WOW. Triathletes ready to go at 7am - credit photos... Continue Reading →
It’s a village affair in Triathlon for William
Vikki, one of mummy's bestest friends, turns 50 in July. So to celebrate, rather than a party, she decided to do a Triathlon of 50s! 50 lengths of the pool - 1.25km 50km bike ride 5.0 mile run Now, she is not alone. After suggesting this to a couple of friends, the whole village of... Continue Reading →
Fancy tackling a new challenge this year? Fancy supporting us in funding vital research for Duchenne? Lets give a triathlon a go shall we - 1, 2 or all 3 parts of it?? You can join as a team, do it on your own, push yourself as hard as you think you can go! 50... Continue Reading →
Proud as punch
Proud as punch of this one ...... something we were never sure he'd achieve as duchenne effects even the fine motor skills ... but he has gone and done it ...... his first licence & it's to use a pen!! (For those that know him he'd probably prefer a licence to drive a supercar!!) We... Continue Reading →
Thank you so much to everyone who took part in our DWAD STRAVA CHALLENGE #scoottodisney last January - the money raised gave me some much needed independence. This was me loving my ride on our family walk today. Watch out for the next challenge soon ....... if you're on strava join TeamDWAD anytime Lots of... Continue Reading →
Donate a Day
This February, we’re asking you to show some love to families affected by Duchenne muscular dystrophy and Donate a Day to Duchenne UK! Many of my 'business' contacts/friends will not know our son's story and our plight to find a cure for Duchenne - a life limiting, devastating condition. https://lnkd.in/eJ2MvbT You could make your day really count... Continue Reading →
Scoot to Disneyworld Florida – are you up for a New Year challenge?
William has always wanted a scooter, but due to Duchenne Muscular Dystrophy he cannot physically scoot. This Christmas his little sister got her first 2-wheel scooter, he was happy for her, but we do wonder what is going through his little inquisitive mind... So, we have had some trials, and are due a couple more,... Continue Reading →
Strava TeamDWAD smashed target 8 days early!
The month of November hasn't finished yet, well we have 8 days left, but the 71 athletes of Strava TeamDWAD have smashed our target. So far this month the 71 amazing people have amassed 688 hours of running, cycling or walking! 👏 👏 This totally smashed our target of 535.4 hours linked to William's type... Continue Reading →
We are very excited to run our first GBBO sweepstake this year. We will be raising money for our DWAD Family Fund. Good luck to all the members this year........