Why are we doing this? How you can help us!

William, our beautiful, caring, funny, articulate little boy was diagnosed with Duchenne Muscular Dystrophy in January 2016 at just 3 years old. Duchenne MD is one of the most common fatal genetic disorders to affect children around the world. 1 in 3500 boys are affected with DMD. It is a devastating, progressive and currently incurable... Continue Reading →

Featured post

We did it!! Triathlon success!

What an amazing day. The sun was shining from our start at 7am all the way through to the fun run at 11am. Over 45 Triathletes took part, competing against themselves for their personal targets to achieve 1.25km swim, 50km bike ride and 5 mile run......WOW. Triathletes ready to go at 7am - credit photos... Continue Reading →

Triathlon anyone??

Fancy tackling a new challenge this year? Fancy supporting us in funding vital research for Duchenne? Lets give a triathlon a go shall we - 1, 2 or all 3 parts of it?? You can join as a team, do it on your own, push yourself as hard as you think you can go! 50... Continue Reading →

Proud as punch

Proud as punch of this one ...... something we were never sure he'd achieve as duchenne effects even the fine motor skills ... but he has gone and done it ...... his first licence & it's to use a pen!! (For those that know him he'd probably prefer a licence to drive a supercar!!) We... Continue Reading →


Thank you so much to everyone who took part in our DWAD STRAVA CHALLENGE #scoottodisney last January - the money raised gave me some much needed independence. This was me loving my ride on our family walk today. Watch out for the next challenge soon ....... if you're on strava join TeamDWAD anytime Lots of... Continue Reading →

Donate a Day

This February, we’re asking you to show some love to families affected by Duchenne muscular dystrophy and Donate a Day to Duchenne UK! Many of my 'business' contacts/friends will not know our son's story and our plight to find a cure for Duchenne - a life limiting, devastating condition. https://lnkd.in/eJ2MvbT You could make your day really count... Continue Reading →

Website Built with WordPress.com.

Up ↑

%d bloggers like this: