Why are we doing this? How you can help us!

William, our beautiful, caring, funny, articulate little boy was diagnosed with Duchenne Muscular Dystrophy in January 2016 at just 3 years old. Duchenne MD is one of the most common fatal genetic disorders to affect children around the world. 1 in 3500 boys are affected with DMD. It is a devastating, progressive and currently incurable... Continue Reading →

Featured post

Donate a Day

This February, we’re asking you to show some love to families affected by Duchenne muscular dystrophy and Donate a Day to Duchenne UK! Many of my 'business' contacts/friends will not know our son's story and our plight to find a cure for Duchenne - a life limiting, devastating condition. https://lnkd.in/eJ2MvbT You could make your day really count... Continue Reading →


The global pandemic of Covid-19 has not only shut down life as we all know it, but it has also stopped fundamental fundraising across the charity sector. It has placed me in the ‘extremely vulnerable’ group – unable to step foot outside our boundary, to go for a walk or go for a bike ride.... Continue Reading →

What is rare

We are all our own rare breeds aren’t we? We all have our own little quirks, habits, rituals, behaviour, manners ….. these can be annoying or endearing – it all depends who you are and who you affect with them. The majority of people choose to behave in the way they do – learned or... Continue Reading →

Up, up & away!

Hi everyone, Sorry I’ve been a bit quiet, I’ve had my 7th Birthday and back into the full swing of school! So, something a little exciting finished being built today - MY lift! Now, I already know this is MY lift and certainly not my little sister Phoebe’s!! 😉 I know it’s for me because... Continue Reading →

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