Jane and Dan Galleni have had to go through what no parent should, loosing their beautiful baby Max 2 years ago to a rare brain tumour.
They were determined to raise money for the hospice that Max was in for the last 8 months of his life, through charity Shooting Stars Chase. For both parents and Max’s sister Chloe the hospice was more like their home for many months. Their plan was to build a gym for parents living at the hospice. Things unfortunately have got in their way of building this for the hospice so they made changes to their plans.
So, now we had our own decision to make – how to put the donated money to good use. We fundraised £25k overall for the project, and we are now looking for another children’s hospice that needs some support for additional facilities such as a sensory room or music room, both of which we spent hours in with Max and Chloe and that bring variety and fun to the supported families.
The £5k that we collected as a wedding gift will be going somewhere very special – ‘Defending William against Duchenne’. William Eames was diagnosed with Duchenne Muscular Dystrophy in January 2016 at the age of 3. William’s amazing family and friends are relentless in their support of him, raising money for research, becoming trustees of the Action Duchenne charity, and more recently fundraising for the vital works to adapt their home so William can manage day to day life as his DMD progresses.
We are very proud to be able to help William, by donating in Max’s memory.
As parents, myself and Matt, are filled with gratitude with Jane and Dan’s overwhelming gift to William and our cause.
Max will forever be in our thoughts.
We are both parents of little warrior boys.
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