Turning on the Christmas Lights

Today I was given the honour of turning on our Village Christmas Tree lights 🎄whilst the brilliant Codicote Community Choir sang some carols. Thank you so much to our wonderfully supportive community for giving me this opportunity - I got to use a plunger which was very exciting! Thank you James Howe and all of... Continue Reading →

Back to Addenbrookes ..

Another 6 months have passed so I’m back at Addenbrooke's Hospital today for my neuromuscular check up. Height, weight and BP all ok as I check in for the clinic. I’ve grown a bit more - which is fabulous as not growing is a side effect of steroids. I’ve not put on weight - again... Continue Reading →

Saracens – what a day!

I attended the most AMAZING day today with Saracens RFC in partnership with Duchenne UK. Myself and my Saracens fan Grandpa were given the honour of walking out the match ball....and the whole family were given five star treatment for the whole day. Wow wow wow 🤩 Thank you Saracens for giving the whole family... Continue Reading →

My house is complete!

As a little boy with an incurable, life-limiting condition my family and myself have learned that we cannot survive life, as we now know it, on our own. We have ‘accepted’ that to provide for me, make my condition and it’s deterioration liveable and enjoy life as we now know it, we must accept help.... Continue Reading →

After a curve ball…

Mummy & Daddy we’re recently thrown a curve ball when my physical results didn’t hit the targets they should have done at clinic. After much research, speaking to people in the duchenne world, speaking to people in the natural therapy world ....... they have decided to do a 6 month trial of full time steroids.... Continue Reading →

Kier lend more support to DWAD

Kier Construction are not only helping with our Big Build but they have also chosen to support DWAD with some office Bake Sales and fun events. Thank you so much to the offices in Rushden, Powys, Stratford, Sheffield, Barnsley & Witham for raising £627.45. This is totally amazing support and also raised so much awareness... Continue Reading →

A charity surprise

This was the surprise for William’s weekend - #capitalsummertimeball cannot thank Partyman's Magic Makers more. William adores music and this is the biggest treat EVER!!! Capital FM! William loves a boogie

Website Built with WordPress.com.

Up ↑

%d bloggers like this: