After a curve ball…

Mummy & Daddy we’re recently thrown a curve ball when my physical results didn’t hit the targets they should have done at clinic. After much research, speaking to people in the duchenne world, speaking to people in the natural therapy world ....... they have decided to do a 6 month trial of full time steroids.... Continue Reading →

Kier lend more support to DWAD

Kier Construction are not only helping with our Big Build but they have also chosen to support DWAD with some office Bake Sales and fun events. Thank you so much to the offices in Rushden, Powys, Stratford, Sheffield, Barnsley & Witham for raising £627.45. This is totally amazing support and also raised so much awareness... Continue Reading →

A charity surprise

This was the surprise for William’s weekend - #capitalsummertimeball cannot thank Partyman's Magic Makers more. William adores music and this is the biggest treat EVER!!! Capital FM! William loves a boogie

My Build has started!

MY BUILD HAS STARTED!   3 years ago my mummy and daddy not only went through my shock diagnosis, but they also moved to our new house just one month later and only 1 week after my daddy was hospitalised with pneumonia, you could say it was a crazy start to 2016.   We've come... Continue Reading →

Rare Disease Day 2019

A message from mummy ……. Dear all, It is 4 years now that I have shared this logo to help raise awareness of Duchenne and Rare Diseases on 28th February. I will have this as my profile picture for the next day and hope to see many on my timelines in support of Defending William... Continue Reading →

Headteachers Award

Learning is quite difficult for me, another thing that Duchenne affects are the muscles in the brain, so mine works a bit differently. I’m pretty intelligent and you can have a full blown conversation with me, so many of you would never know!! I learn in a different way to your ‘normal’ child, that’s why... Continue Reading →

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